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9781421410968 Academic Inspection Copy

The Story Within

Personal Essays on Genetics and Identity
  • ISBN-13: 9781421410968
  • Publisher: JOHNS HOPKINS UNIVERSITY PRESS
    Imprint: JOHNS HOPKINS UNIVERSITY PRESS
  • Edited by Amy Boesky
  • Price: AUD $64.99
  • Stock: 1 in stock
  • Availability: Order will be despatched as soon as possible.
  • Local release date: 13/02/2014
  • Format: Paperback (229.00mm X 152.00mm) 280 pages Weight: 386g
  • Categories: History of medicine [MBX]
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In The Story Within, authors share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what 'health' is or whose life has value. They write hoping to expand conversations about genetics and identityto deepen debate and generate questions. Whether they or their families are affected by Huntingtons disease, Alzheimers disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia, their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.

""When medical students really feel that they understand genetics... let them read The Story Within and be brought down to earth with a bang. I know I was.""

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